Parent Project UK - A charity set up by parents and supporters of boys with Duchenne and Becker Muscular Dystrophy that promotes research to find a cure or viable treatments.
Duchenne Family Support Group - For families affected by Duchenne muscular dystrophy. Minimal information online but telephone helpline numbers supplied.
Facio Scapulo Humeral Muscular Dystrophy (FSH-MD) Support Group - Patients, families and carer run group, supporting those with FSH-MD. Disease information, newsletters, events and message board on-line.
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