Bazsites.com Batten Disease
Directory Topics
On the Web
- Batten Disease Support and Research Association - BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
- The Luke and Rachel Batten Foundation - Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease.
- Batten Disease Information Page - Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- Nathan's Battle - Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
- Testing an old drug on deadly Batten disease - [CNN]
- The Natey Foundation - Information for parents and families of Battens victims.
- Sacha's Story - Personal story of a young girl in the UK, includes journal, blog and information about the disease.
- NCL-Stiftung - Die Stiftung informiert über ihre Ziele und Aktionen und über die Erkrankung Neuronale Ceroid Lipofuszinose (NCL, engl. Batten Disease).
- NCL-Gruppe Deutschland e.V. - Der Verein stellt sich und seine Ziele vor und informiert über die Erkrankung Neuronale Ceroid Lipofuszinose (NCL, engl. Batten Disease).
- Kampf gegen NCL - Dargestellt werden allgemeine Informationen über die unheilbare, todbringende Krankheit NCL (Batten Disease) und den Kampf von Frederik Egold gegen diese Krankheit. Die Dokumentation erfolgt vorwiegend in Form von Bildergalerien.
Wikipedia Articles
- Heinrich Vogt - Heinrich Vogt (1875-04-23, Regensburg – 1936, Bad Pyrmont) was a German neurologist. He published papers on tuberous sclerosis and Batten disease.
- CLN3 - CLN3 is a protein on chromosome 16. It is associated with Batten disease.