Bazsites.com Ehlers Danlos Syndrome
Directory Topics
On the Web
- Ehlers-Danlos Syndrome Medical Information - Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, pregnancy considerations, and more.
- Ehlers Danlos Foundation of New Zealand - Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
- The Hypermobility Syndrome Association - HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, and message boards.
- The Swedish Ehlers-Danlos Syndrome National Association - The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning symptoms and consequences. Find contact details and links.
- Ehlers-Danlos Syndrome Support Group - This site offers extensive information for patients and doctors, plus links.
- NORD: Ehlers-Danlos Syndrome - Information about EDS from the National Organization for Rare Disorders.
- Ehlers-Danlos-Initiative - Informationen über das Ehlers-Danlos-Syndrom und die Deutsche Ehlers-Danlos-Initiative e.V.
- Hypermobility Forum - This is a moderated discussion board for Hypermobility Syndrome, Marfan, and Ehlers-Danlos. Includes personal experiences, traditional and alternative treatment, and pain management tips from fellow patients.
- HealthWise: Ehlers Danlos Syndrome - Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types.
- Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome - Symptoms, diagnosis and treatment of the condition.
Wikipedia Articles
- Type-V collagen - Type-V collagen is a form of fibrillar collagen associated with classical Ehlers-Danlos syndrome.
- Tenascin X - Tenascin X is a type of Tenascin associated with Ehlers-Danlos syndrome.
- Gorlin sign - In medicine, Gorlin sign is the ability to touch the tip of the nose with the tongue. It suggests Ehlers-Danlos syndrome.